I want to believe.
Eh so, yeah...
I was hit by a drunk driver last December and started having problems about a month or two later. At first it just seemed and felt like whiplash so I continued to work, etc. and treated it as such.
Now I'll be having the first surgery of my life soon (date not set exactly yet) and at 24, almost 25 years old, it will be to remove a 2.2cm arachnoid cyst on one of the membranes between the brain and the skull. It's benign, thank God, so there's that. Unfortunately I have about 14 of 17 possible symptoms associated with it but it took me 10 months to get diagnosed and a proper MRI because of two reasons. One is the fact that I am prescribed to Wellbutrin and have been stable with that for years, so because of this I was diagnostically overshadowed by a neurologist four months ago who should have followed through with a complete scan order based solely on HALF of the symptoms I had at the time. She told me it was most likely psychosomatic and would go away on it's own. I waited three months for that appoinment. Wow. Anyway...
I go see a highly respected chiropractor and start a treatment plan getting adjustments with an activator and other run of the mill therapies. After almost two months, there was some obvious improvement in body functionality and posture however my neurological symptoms were skyrocketing. So they ended up ordering the MRI and it came back with that news a couple of days ago and so here I am.
It's been a pain in the ass, cause bros, I don't know if any of you have ever suffered from severe neck/back or neurological pain but it's an absolute bitch to properly explain, work through, diagnose and maintain daily life before you even have hard proof of something wrong. In the past year, with little to no treatment I have had vasovagal attacks several times, inward trembling and tremors combined with muscle weakness and soreness every single day, erratic body temperature and nerves that stand on edge several times a day no matter how relaxed I am, nausea/dizziness/balance loss so bad that I could not walk or leave bed for more than a couple of hours a day/migraines with aura and halo effect/loss of muscle control a couple times a week/speech problems/extremely weak and painful left shoulder and arm/wobbly and weak knees/tension under my breastplate/loss of facial expression and recognition with facial pain in related muscles including severity areas in jaw and eyebrow area/blurred vision and light sensitivity that made me cry one time it was so bad with all of the other symptoms/deviation of my entire frame because the nerves have altered the contour of their normal route to go around the cyst so it caused ulnar deviation I correct myself with wrist-wraps and insane spinal problems/tortacullis (sp?) in my neck among them and I don't even want to continue. Throughout all of this I still had to work at one point, then spent every moment afterwards still having to actually go through with daily life and prove something was wrong with me because my doctors weren't seeing it and family & friends are difficult to explain. I have a great support system, but you can only do so much. I am eternally grateful for everyone who has been here for me though. Some of the hardest months of my life...
They're not over, either. Still playing a waiting game while having been out of work and on bedrest for months, I have to call the neurosurgeon on Monday to explain that I've been symptomatic for almost a year and because they don't know that yet, hopefully that will push them to do the surgery faster because I'm losing a lot of my health in some of the hardest ways to heal. For those of you who don't know, a typical cyst like this is milimeters and mine is two fucking centimeters and then some. It's disrupting my glossopharyngeal and vagus nerve roots as well as spinal accessory to nerve roots 9-11 and possibly involving 7 and 8.
I've just been toughing it out, staying calm and doing as much as I can. I quit smoking (for real) and completely changed my diet, which was already pretty healthy in the first place. I'm anxious, feel completely overwhelmed by the lack of sense of urgency from those with the ability to assist me and I'm in a ridiculous state of either pain or debilitating neurological effects.
Does anyone have any advice on any of this? Has anyone ever had a surgery like this before or know anything about it? I'm a bit scared, but I've accepted it and have a lot of faith in these particular doctors but I'm so very uncomfortable all the time. I have never been given pain medication or anything this entire time, either...
Anway...that's that. I hope it goes well so I can get back to arguing about EverQuest full time.
Last edited by eXarc the Internet Panther; 09-07-2013 at 09:07 AM.
The chiropractor was a last resort and I was getting practically free treatment anyway. As an overall health professional he is personally fantastic and is 80% of the reason I've made any progress.
I've been to a chiro that lets you walk in, hop on a table and manipulates you for ten seconds and that's that. This is a bit different and even so, I don't give much of a fuck about the chiropractic treatment. It was always about the neuro issues.
@Oneofone - Believe what?
Last edited by eXarc the Internet Panther; 09-07-2013 at 11:01 AM.
I thought this was the moderated forum for adult disucussions with no bullshit?
You guys are reflecting the situation I came here to vent about. If you're someone who thinks I'm making this shit up, I swear if you had a stethoscope around your neck I'd strangle you with it. It's infuriating, why the fuck would I even bother?
Here. I have more that would prove it beyond a doubt but it's confidential and I'm not about to post all that shit for everyone on the internet to see. This alone is already too much, but if it can actually have someone respond with something meaningful then I'm willing to put this out there. If this isn't enough, then forget it.
Either way look at it like this, there are people who have had tumors removed from their brain or have had heart transplants and have lived just fine afterwards. Take comfort in knowing that others have gone through even more than you will be going through and are living good lives today.
Last edited by Big Phoenix; 09-07-2013 at 11:46 AM.
Not why someone would doubt your story. Good luck in your surgery and enduring until then. Sorry I don't have any advice.
I guess with the Potam/CTV incident and the cancer issue mentioned above, the hidden trannies, the exposed pedophiles and all that I can start to see why some skepticism is warranted.
This is a forum dedicated to this kind of shit though, and it's not like I came here asking for money either - this is like an $80,000 (ballpark) procedure, shit. Advice or not, the support just helps a lot. The escapism of a somewhat anonymous brotherhood over the net is just a different catharsis for me and helps me clarify things, so I appreciate the sentiment man.
Did you sue the person who hit you? Or was it your fault? If it was their fault, be a Jew and sue their butt. Or at least have them pay for the medical bills.
(Sorry about your surgery. I hope it goes well.)
Even worse (and fucking weird as it turns out) is that it was a hit and run at first. He hit my backend, cracking my bumper in half while pushing me straight through a turn going 50mph (it's a 40-45mph curve) and I went through a small ditch and the curve speed sign swiped my entire left side, took off my rearview and door handle. Anyway, before he hit me I saw his vehicle in my rear view mirror because I noticed he was accelerating oddly fast considering a turn was coming up.
I get out and pull myself together to call the cops and the dude is nowhere to be found. Cop shows up and insists I'm drunk and that it was my fault - until I made him help me find my bumper which was split in half and had paint from the other vehicle on it...No way I did that shit myself.
So how could I know I was hit by a drunk driver if it was a hit and run? Well apparently he gets pulled over in the next city (that I was also going to be passing through) for reckless driving or swerving, some shit. I forgot the exact terms. Anyway, this was a couple of hours later after I had already filled out an entire police report that included no other parties involved to be held legally responsible - the cop contacted me and asked me if the vehicle met the description and a bunch of other shit anyway though (apparently his vehicle had damage that would have matched accordingly). So I ask the cop if we can still charge him after the fact and he says it's a possibility - but then I talk to my insurance company. I share a policy but I have a literally flawless driving record for insurance. They were going to raise my rates wether or not he was held responsible for the damage and the raise was so expensive that it would be less money to fix my car out of pocket than have to pay raised rates for who knows how long...
I have health insurance too so it's not like I have to sue for that either. Just a fucked up situation really.
And thanks Kuriin.
Last edited by eXarc the Internet Panther; 09-07-2013 at 03:13 PM.
Don't bring your insurance in this. The dude has a record. Search him out and file a lawsuit against him. Have his insurance pay for your stuff. Trust me, you should not have to pay for /any/ of this. And when I mean by any of this, I mean ANY doctor visits, ANY chiropractor visits, AND surgery costs.
Judge Judy man. Trust me. She's my people and she will do you no wrong.
That would be nice...
I still have the police reports and every doctor bill/diagnostic report since but I hadn't thought of backtracking and hunting him down. Guess I'll have to make some calls.
Also id tell your insurance company to fuck themselves and let them know youre canceling your policy with them for being slimy pieces of shit and go else where. Send a letter to the ceo or somethign while youre at it telling them how big of a piece of shit his company is for fucking over a dude who already got fucked in the ass through no fault of his own.
Last edited by Big Phoenix; 09-07-2013 at 09:26 PM.
If you're dealing with a hospital and the doctors aren't listening to you then see one of the hospitals patient advocates.
My stepdad is a neurosurgeon so if you have any specific questions I can always ask him. All I can say based upon years of surgical commentary around the dinner table is:
1) Neurosurgeons think chiropractors are frauds at best and butchers at worst. Don't tell your Neuro you are seeing a Chiro or he may fire you as a patient (no joke).
2) I've met many of his patients whom he has removed tumors from, and most you can never tell anything was ever wrong with them. In some more severe cases where the tumor was located in sensitive areas, some had partial facial paralysis and/or degraded vision, but other than that they were fine.
That's comforting. Thanks man.
I'm aware of all of the chiropractic stigmas that exist but there are a couple factors that make my situation a bit different -
1 : Neurologist I saw before chiro did literally nothing and dismissed my case entirely
2 : I had my MRI that caught the cyst ordered by the chiro's own clinic and I have a phenomenal neurosurgeon *through* this chiropractor by his referral. They did everything to get me there.
3 : I am actually not a huge fan of chiropractic treatment myself but it was a last resort and honestly probably saved my life, even if my case is rare. This chiropractor works with the NFL and also other really hard to treat and off the wall disorders and doesn't always do direct typical chiropractic work...if that makes sense.
4 : I just want this shit taken care of, I don't care who, how, or what does it but I just had to do something.
Solid advice though, cause I mostly do agree.
Last edited by eXarc the Internet Panther; 09-22-2013 at 10:59 AM.
eXarc first I'm really sorry to hear this happened to you man. I don't really have advice but my uncle is a neurologist and I would be more than glad to forward any questions you have to him.
Good luck bro, hold strong
Hire a lawyer. You are entitled to much more than medical bills. Lost wages and pain/suffering have real value. I've never advocated frivolous lawsuits just to "get paid" but your case is not that. Don't be short sighted. Good luck with your surgery.
Thanks for all of the advice guys, I'm processing it all and will keep updated.
I am still waiting to get evaluated for surgical procedure date/method.
They know I have seen 2 neurologists within this entire last year neither of which would order a scan for me, leaving me at about an 11 month mark of being symptomatic and in pain. I know neuroanything are extremely busy, but is it kosher to call the office and try to push the appointment if my symptoms are persistent and also getting worse? Or do I just atrophy for the next couple of months until they can see me? I don't know, it might seem stupid but I've seen people piss doctors off before and crossed the rubicon over some seemingly asinine bullshit.
Last edited by eXarc the Internet Panther; 09-22-2013 at 11:08 AM.
I am seeing a neurosurgeon as follow up after getting an MRI of my neck (came back clean, thankfully) to schedule the surgery itself. We're going through with it and it's going to be a major one, since I'm opting for craniotomy rather than any kind of scopic procedure since draining the cyst rather than removing has a high percentage rate of the cyst refilling with fluid and causing problems again later down the road, and since this cyst is rather large I cannot live with that risk. If it were to split/tear at this point alone, I would be in dire conditions so I can't imagine having it regrow later down the road and have to deal with this again. The surgery will most lately take place in a couple weeks, the doctors said it is rather urgent as at this point I can barely walk properly and coordinate my body very well and have had seizing/convulsions. I am at risk for a stroke/paralysis and losing vision/speech functions at this point unless we act.
So here's the thing - I had an MRI of the brain done in 2011 to screen for similar symptoms although nothing quite as severe as what provoked my current diagnostics (this condition of arachnoid cyst was diagnosed in 2013, September 3 to be specific) with and without contrast. I was told the MRI came back completely clean and saw the report, but never saw the slides myself. The neurosurgeon, understandably, wanted the slides from 2011 to see if this was a pre-existing condition they missed or if this was due to trauma as it does make a difference.
Now, let's say that the cyst was there on the MRI in 2011, although much smaller (and it is completely benign) but they did not tell me about it - do I have a case for malpractice?
My logic is here is that it's an abnormality on the brain and no matter how seemingly irrelevant it might seem, since they failed to warn me about it I am where I am now, requiring major surgery and was in and am currently in excruciating pain for a long period of time as well as out of work for almost 6 months.
Can anyone tell me if I legitimately have a case or not? Obviously I have people in real life helping me with this, but since a few of you said I could ask for advice if I needed it, I would really appreciate all the input I can get.
Not gonna lie bros, the condition could be much worse but I am kind of scared. This shit is no fun.
Last edited by eXarc the Internet Panther; 10-13-2013 at 02:20 PM.
I am not a lawyer, but you need to talk to one right away. Preferably one who has a good track record of sueing the shit out of people. This is going to have real consequences on your quality of life going forward. You may have a case against the driver, insurance company, and doctor. They will be foaming at the mouth just to talk with you.
Thanks for all of the advice and support so far. General consesus is that I should get a lawyer across the board, so it looks like that's what's going to be happening.
Yes on the lawyer part but keep in mind that the brain is the most nourished part of the entire body.
Thats why cysts, cancer and whatnot else can possibly grow that fast; with what your describing this seems to be the case here as well.
So its highly unlikely you can clearly see something on the 2 year old screens, and even if you can make something out -since 2 years later you know exactly where and what to look for- you would prolly still have to prove the doc was incompetent or untrained, drunk that day etc. but thats what only a lawyer could tell you since we are not.
I had to have an MRI lately as well, and you certainly want to have a few people look at it. Especially if you have ones you can compare from 2011, like you said. I got 2 different opinions on what was happening from 2 different doctors. I don't know specifically how your MRI(s) have been reviewed but the review is a lot of times emailed to India or Hong Kong (this is a real thing), then a doctor glances over the diagnosis from there and goes "Yeah, that's right I think" and just goes with it. The comparison MRI can be really useful in determining if this is a problem exacerbated that someone missed, so be sure to get at least another radiologist to go over it closely.
Last edited by Weaponsfree; 10-15-2013 at 12:58 AM.
Just curious what convinced the neurosurgeon this was the cause of your symptoms? In the recent MRI did they mention that this cyst is pushing on anything? In guessing its obstructing the ventricles somewhere?
I would imagine that if you are going to surgery then he must have imaging evidence proving this cyst is compressing something that is responsible for your symptoms.
On a side note - be very careful with chiropractors. More than once have seen arterial dissections from neck 'adjustments" that lead to major strokes in people in their 20s and 30s. Not sure how the chiros have kept that shit out of the media
Yeah, I'm aware of how comon they are. Strange that you say that this is pretty small because ever single doctor qualified in the field I've talked to has said that this isn't small at all, but perhaps they mean the size in regards to the length of time in which it grew...
Also aware of the fact that most are completely benign and are completely asymptomatic but my symptoms are undeniably present, as for the exact cause I won't know until next Tuesday. (Hopefully)
October 22nd should be the day where they have a full diagnostic ready, after comparing all MRIs and having multiple doctors consult on my case so as for your questions, I'm not going to know what it is exactly until then. I'd rather not play the guessing game. From what the slides reveal and the reports state, it is altering the contour of several cranial nerves as well as the vagus and hypoglossopharyngeal nerves/nerve roots.
Yea, it sounds like its in a bad spot. Maybe they mean its large relative to the area it's in, causing an impact on adjacent structures. My guess is skull base/jug foramen.
A large number of these cysts are higher up, (in areas called the temporal fossa and higher in the posterior fossa), where they can be 4cm even and cause little symptoms. But again that involves how quickly they grew - if something was in someone's brain their whole life it's less likely to cause problems, even if its larger than something small that popped up quickly
Well, you were spot on. It's between my brainstem and other sensitive areas. They have to operate through the base of my skull around by going in around my ear apparently. Talk to the surgeon specialist this coming Monday, I guess to discuss it more and schedule it.
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