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  1. #1
    Former Zombie suineg's Avatar
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    Health Problems

    Ok I have some medical problems. I know we have some big brains here and maybe some people that are also doctors or scientists or whatever. I have done a lot of labwork and stuff but I don't think I am communicating with these German doctors very well about what is going wrong so I bring it to you guys. Maybe one of you have similar problems and your labs look the same so I added scans of my labwork.

    Symptoms:

    - Stuttering randomly, this one is odd because I will know what word I want to say, I can't say the word but if I choose a synonym in my head I can work it out. I also can say it over and over in my head sometimes and eventually will get it out but it's awkward.
    - Memory loss like big time. I don't remember what I ate for meals last week. I don't remember half of the people I meet. All kinds of issues here.
    - I am starting to have trouble using homonyms and screwing up a lot of my typing. Some of you might have noticed it here on the forums but probably not. I lose track of my thoughts a lot of the time during a post or typing an email or something else. It's super annoying.
    - Joint pain, arthritis pretty much.
    - Extremity numbness at times and twitching.
    - Extreme headaches.
    - Fatigue all the time. I could sleep for the rest of my life and probably still be tired.
    - Light sensitivity.
    - Dry eyes.
    - Rash under my eyes that comes and go and nothing clears it up.


    My general practicioner is American and she feels there is some kind of issue. We were looking at MS and Lupus but just can't back it up I don't think. Right now I am trying to just wait it out until some bigger symptoms show up but I am getting extremely frustrated.

    I have an MRI that had nothing show up out of place. I don't have the pictures from that with me but I doubt anyone would want to see my brain anyways.

    The lab work that was an issue was the ANA was positive and high. I also have markers for Lyme disease but not the rash and it isn't high enough for the amount of time that I have had symptoms.

    Does anyone have any thoughts? Know some specialist in their family they could refer me to that I could email labs to?




    oderint dum metuant

  2. #2
    Registered User joeboo's Avatar
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    Christ man, I've got nothing productive to add other than good luck, I hope they can figure it out. That's a terrible list of symptoms, I hope you can eventually get some treatment that helps.

  3. #3
    Registered Dragonlord Deathwing's Avatar
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    Did you throw in Lupus just so no one could make a joke about it?



    To be fair, I don't remember what I had for dinner last week either. I mean, I know I had pizza one day. Reubens another day. But I'd really have to sit down and think it through to nail down each specific day. It's just not that important so I don't remember it. Maybe the people you meet are boring too.

    Sorry that I can't be of any help. Some of those symptoms said Alzheimers to me. NOT QUALIFIED TO DIAGNOSE IN ANY WAY.

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    Delicious Noodles Noodleface's Avatar
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    I'm not a doctor but I've watched a lot of ER. I don't know where I was going with this post, I just wanted to make that joke.
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    Former Zombie suineg's Avatar
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    Quote Originally Posted by Deathwing View Post
    Did you throw in Lupus just so no one could make a joke about it?



    To be fair, I don't remember what I had for dinner last week either. I mean, I know I had pizza one day. Reubens another day. But I'd really have to sit down and think it through to nail down each specific day. It's just not that important so I don't remember it. Maybe the people you meet are boring too.

    Sorry that I can't be of any help. Some of those symptoms said Alzheimers to me. NOT QUALIFIED TO DIAGNOSE IN ANY WAY.
    No we actually looked at Lupus even though we joked about it when we did it. The symptoms kind of line up but the cases of males and just everything about that disease just make it unlikely.

    I have looked into Alzheimers unfortunately there is no test for that. There is just the autopsy. According to a DNA profile I did a long time ago it says I have one copy of the APOE ε4 variant. APOE ε4 is not the only factor contributing to Alzheimer's disease. Although it is associated with increased risk of Alzheimer's, many people with the APOE ε4 variant never develop it. This puts me at around 15% likely to develop it. This is double the average. Alzheimer's at 32 though is not very common. It would also be a real shitty diagnosis I think
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  6. #6
    Megistered Jooserockey Eomer's Avatar
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    Hope it's not that. I have a friend whose dad was diagnosed with it in his 40's, and was dead by his 50's. It's extremely rare though.

  7. #7
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Eomer View Post
    Hope it's not that. I have a friend whose dad was diagnosed with it in his 40's, and was dead by his 50's. It's extremely rare though.
    Yeah would rather not know that I have Alzheimer's if it's that. There is nothing you can do about that one at all. Would rather have something worse that is quicker.
    oderint dum metuant

  8. #8
    Registered User joeboo's Avatar
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    Yeah, no way its Alzheimers(unless it's that, combined with something else), too many physical symptoms(rash, headache, etc) to be alzheimers.

    This is totally out of left field, but have you had your home tested for mold levels? Mold can do some crazy stuff to people, many of those symptoms could easily be due to mold issues in your home(or even just in your bedroom or mattress or something you are in regular contact with)

  9. #9
    Former Zombie suineg's Avatar
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    Quote Originally Posted by joeboo View Post
    Yeah, no way its Alzheimers(unless it's that, combined with something else), too many physical symptoms(rash, headache, etc) to be alzheimers.

    This is totally out of left field, but have you had your home tested for mold levels? Mold can do some crazy stuff to people, many of those symptoms could easily be due to mold issues in your home(or even just in your bedroom or mattress or something you are in regular contact with)
    We looked into mold. The symptoms have been progressing over years and we have lived in three different houses in that timeframe and one of those is now in a different country. Unless I have some kind of trunk I am taking around that is full of mold then it isn't that.

    Yeah Alzheimers isn't super likely even if the other symptoms just happen to be other minor issues. I will keep saying that like a mantra.
    oderint dum metuant

  10. #10
    Registered User Kirun's Avatar
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    All the fatigue, numbness in extremities, eye issues, and joint pain sort of had me thinking diabetes, but your glucose is fine. In fact, aside from slightly elevated cholesterol, your labs look pretty decent. MRI will usually catch something like MS, so I'm stumped there as well.

    Is it possible that the memory issues aren't as large of a factor as you're making them out to be? I don't really remember what I had for breakfast last week either, unless you put a gun to my head or gave me "hints" about something else that happened during the day. How is your sleep schedule? A shitty sleep schedule(not going to bed and waking up at the same time, nearly every day)can really fatigue the hell out of you. I know it used to do it to me, back when mine was all fucked up. It could just be a case of "getting older"(the joint pain, numbness from nerve/back issues)or a lot of stress. Certain stress disorders can closely mimic MS symptoms.

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    Out of curiosity how long has this been going on? Did the onset coincide with any other event? Moving to a new house or new job, any injury, change in diet, trips outside the country?

    In any case good luck with finding what's wrong. I wish I had something to offer.

  12. #12
    Registered User joeboo's Avatar
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    Quote Originally Posted by suineg View Post
    We looked into mold. The symptoms have been progressing over years and we have lived in three different houses in that timeframe and one of those is now in a different country. Unless I have some kind of trunk I am taking around that is full of mold then it isn't that.

    Yeah Alzheimers isn't super likely even if the other symptoms just happen to be other minor issues. I will keep saying that like a mantra.
    You haven't been using the same mattress in your bed that whole time have you? We had a customer who thought they had mold issues in their apartment, so they moved, and still had issues. It was in her mattress.

  13. #13
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Dashel View Post
    Out of curiosity how long has this been going on? Did the onset coincide with any other event? Moving to a new house or new job, any injury, change in diet, trips outside the country?

    In any case good luck with finding what's wrong. I wish I had something to offer.
    How long? Joint pain and snapping plus popping noises when I walk sometimes since I was probably 17. Couldn't ever sneak out of the house you would hear me in the hallway. The headaches probably noticed really in my early 20's. The rest of it probably in the last 3 - 5 years and steadily progressing. It comes and and goes though in what you could call "flares" if you would which is why we explored Lupus a bit.

    No diet change.
    Not coinciding with a move.
    I don't get stressed and haven't had any stressors other than this in my life.
    New job but the new job was a huge plus for me.
    It started before I moved to Germany.
    No injuries but my appendix did decide to give out on me so they removed the rebellious organ.
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  14. #14
    Former Zombie suineg's Avatar
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    Quote Originally Posted by joeboo View Post
    You haven't been using the same mattress in your bed that whole time have you? We had a customer who thought they had mold issues in their apartment, so they moved, and still had issues. It was in her mattress.
    Two different matresses. All new pillows, hers and mine. I usually smash a pillow every other month from the weight of my head and have to buy a new one anyways.
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  15. #15
    Registered User sl4ck3r's Avatar
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    I can't tell from the lab results, but low testosterone values played as a factor of a relative's fatigue problems, receiving shots have helped them tremendously. I've always had terrible eye sensitivity to light and could never go outside without sun glasses otherwise my eyes would water up. Eye dryness has come about due to working in an IT datacenter with the constant airflow, has dried my eyes and now I can't wear contacts without irritation after a few hours. Drinking an excess of caffeinated drinks made my eyes twitch as well as headaches. I share a lot of these symptoms, wow, probably not as severe from the sounds of it.

    Also, where's the joint pain located at? Is it always in one particular area or all joints? Hopefully this is just a bunch of small unrelated symptoms, and can be resolved...

  16. #16
    Rerolled Desserter McCheese's Avatar
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    Are you sure all of the symptoms you listed are related? It sounds like you're going about this assuming everything is connected, but isn't it possible that some of them are completely separate issues?

    For example, the joint pain (arthritis) and headaches. What makes you think these are connected to the other issues? It seems likely that some of the physical symptoms might be separate problems in their own right and unrelated to some the mental problems you've noted.

  17. #17
    Former Zombie suineg's Avatar
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    Quote Originally Posted by sl4ck3r View Post
    I can't tell from the lab results, but low testosterone values played as a factor of a relative's fatigue problems, receiving shots have helped them tremendously. I've always had terrible eye sensitivity to light and could never go outside without sun glasses otherwise my eyes would water up. Eye dryness has come about due to working in an IT datacenter with the constant airflow, has dried my eyes and now I can't wear contacts without irritation after a few hours. Drinking an excess of caffeinated drinks made my eyes twitch as well as headaches. I share a lot of these symptoms, wow, probably not as severe from the sounds of it.

    Also, where's the joint pain located at? Is it always in one particular area or all joints? Hopefully this is just a bunch of small unrelated symptoms, and can be resolved...
    Yeah if you sit down and try to tabulate all your "symptoms" for anything you really feel like you are blowing out the most minor things way out of proportion.

    I haven't gotten my testosterone tested. I will look into that, thanks. The dry eyes is a recent thing and could be a non issue. I went no caffeine for a while and a bunch of other things for the headaches, nothing so far has done what I need. Excedrin Migraine is the only pill on the market that helps also. When that was off the market I just had to power through.

    The joint pain is elbows, knees, ankles, and finger joints. Wrists are generally ok and that is about all the major joints except hips. I think my left elbow is ulnar nerve entrapment because my left pinkie and ring finger randomly go numb and twitchy. I am going to get a nerve conduction study done on that arm to see if that is what it is. The joint pain goes away with Tramadol but I can't be taking that every day for the rest of my life. The Tramadol does absolutely nothing for the headaches though, I am pretty sure it shouldn't though.
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  18. #18
    Former Zombie suineg's Avatar
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    Quote Originally Posted by McCheese View Post
    Are you sure all of the symptoms you listed are related? It sounds like you're going about this assuming everything is connected, but isn't it possible that some of them are completely separate issues?

    For example, the joint pain (arthritis) and headaches. What makes you think these are connected to the other issues? It seems likely that some of the physical symptoms might be separate problems in their own right and unrelated to some the mental problems you've noted.
    Not sure they are related at all. They "seem" to "flare" up around the same times though. I have arthritis like pain but not all the time. Sometimes it's all good in the hood. That and they all seem to be progressing at the same time which could be old age only.
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    How is your sleep? My first thoughts were exhaustion/fatigue and then mold. Due to the duration of symptoms exhaustion/fatigue would need a root cause. Considering where we are and what you've done in the past (I know what you did last summer........thatyou play MMOs) sleep deprivation seems logical.

  20. #20
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Maebe View Post
    How is your sleep? My first thoughts were exhaustion/fatigue and then mold. Due to the duration of symptoms exhaustion/fatigue would need a root cause. Considering where we are and what you've done in the past (I know what you did last summer........thatyou play MMOs) sleep deprivation seems logical.
    I sleep a lot. I mean a lot. I can easily do 12 hours of sleep a night with no issue. I also sleep super solid. The wife comes in and I don't move at all or anything when I sleep. She has checked if I am dead before. The neurologist blamed it all on sleep and dismissed me though so it was a good idea.
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  21. #21
    The White Knight Izo's Avatar
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    I was thinking it could be a test from your God. Maybe an x-box or vicodin can fix it?

    Ferritin at 14,7 ug/l is manifest iron deficiency, non-anemic. It can cause fatigue. You need iron supplements, get a physician to calc for you, too much is dangerous! Do you have blood in the stool perhaps or recent surgery?

    I'd get a glucose load test done as well to rule out diabetes - it's not done by simply looking at the current glucose level you have.

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    Registered User sl4ck3r's Avatar
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    Wasn't sure if it was a local joint problem or throughout, but figured it was worth the shot at asking. I have discomfort in my knees at times and performing some basic stretches has actually relieved all of that discomfort thankfully.

  23. #23
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Izo View Post
    I was thinking it could be a test from your God. Maybe an x-box or vicodin can fix it?

    Ferritin at 14,7 ug/l is manifest iron deficiency, non-anemic. It can cause fatigue. You need iron supplements, get a physician to calc for you, too much is dangerous! Do you have blood in the stool perhaps or recent surgery?

    I'd get a glucose load test done as well to rule out diabetes - it's not done by simply looking at the current glucose level you have.
    The doc and I got me on iron. I do have blood in my stool that comes and goes. Colonoscopy ruled out anything major. The official stance is internal hemmorhoids that aren't visible. We ruled out diabetes already.
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  24. #24
    Registered User Xasten's Avatar
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    Quote Originally Posted by Izo View Post
    I'd get a glucose load test done as well to rule out diabetes - it's not done by simply looking at the current glucose level you have.
    ^

    I had a lot of your symptoms, especially the sleeping issues, but my fasting glucose was normal, but I was developing type 1. As soon as I started dosing insulin, my life changed.

    Also, have you had a sleep study? Apnea and acid reflux can cause major disruptions despite you looking like you're soundly asleep. If you get a lot of sore throats, look into a bodylength wedge mattress + acid blockers. I also had my life change for the better after getting my sleep study done and dealt with the reflux.

  25. #25
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Xasten View Post
    ^

    I had a lot of your symptoms, especially the sleeping issues, but my fasting glucose was normal, but I was developing type 1. As soon as I started dosing insulin, my life changed.

    Also, have you had a sleep study? Apnea and acid reflux can cause major disruptions despite you looking like you're soundly asleep. If you get a lot of sore throats, look into a bodylength wedge mattress + acid blockers. I also had my life change for the better after getting my sleep study done and dealt with the reflux.
    No sore throats, I am refluxing a lot lately and randomly choking on spit or just air. I am going to do a sleep study.
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  26. #26
    Registered User joeboo's Avatar
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    How are your B12 levels? My father had a lot of energy issues, as well as memory and general mental alertness problems. His doctor figured out that he had a B12 deficiency, so now he goes and gets a B12 shot every 2 weeks and it's made a world of difference, he's like a totally different person.

  27. #27
    Former Zombie suineg's Avatar
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    I have a third set of labwork I didn't scan and post that overlaps most of the tests but they added the Lyme that tested high and B12 which was good. We went ahead and did some B12 supplements to see if that would give me some energy but it didn't. That battery of labs also eliminated Celiac's.

    The Borrelia Burgdorferi IgG-Ab was double what it should be but Lyme was just not what they thought was possible. No rash and some other things he explained at the time, it just didn't fit.
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  28. #28
    Registered User Kedwyn's Avatar
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    Wife took a look a look at your numbers.

    Your lipids are high but unrelated to the issue. Need to get that checked though.

    Iron being low is minor since your h&h is fine but a supplement its good

    C reactive protein which shows your body is fighting some kind of inflammatory process is 3.0 and it should be below .8
    white blood cell (bks) is 28+ also an issue with above your body is fighting something


    You really need to see some specialists. STAT with those symptoms. This is well beyond the realm of a GP.
    Last edited by Kedwyn; 06-18-2013 at 08:42 PM.

  29. #29
    Registered User joeboo's Avatar
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    Hell, what type of specialist do you even start with when you have that many varied symptoms? Neurologist maybe?

  30. #30
    Registered User Kedwyn's Avatar
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    Neurologist and infectious disease.

  31. #31
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Kedwyn View Post
    Neurologist and infectious disease.
    Neurologist took a look at the labs, yawned and told me that my work schedule was crappy and I should maybe look into a sleep study in the future.

    Rheumatologist said, "It looks like Lyme but isn't, no other issues I can see".

    EDIT: Oh and yeah lipids I think are more in check now. I was 13 years in the Marines eating well and exercising my ass off. The last year I let go a bit is what we think was going on. Eating better again and taking supplements to lower them.
    Last edited by suineg; 06-18-2013 at 09:31 PM.
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  32. #32
    Registered User Kedwyn's Avatar
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    Go see an infectious disease specialist. Your igg/ame weren't elevated so rheumatologist was the wrong specialist. This likely isn't histamine event with an elevated white count.
    Last edited by Kedwyn; 06-18-2013 at 09:39 PM.

  33. #33
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Kedwyn View Post
    Go see an infectious disease specialist. Your igg/ame weren't elevated so rheumatologist was the wrong specialist. This likely isn't histamine event with an elevated white count.
    So I tell my GP based on the CRP and BKS I would like to see infectious disease? Should we do bloodwork over again before making that call?

    That bloodwork was from January.
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  34. #34
    Dr. Ruse Ruseberg Tarrant's Avatar
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    Everything in your OP matches what my brother (who was also a marine) had going on for a long time before he was finally diagnosed with a seizure disorder.

  35. #35
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Tarrant View Post
    Everything in your OP matches what my brother (who was also a marine) had going on for a long time before he was finally diagnosed with a seizure disorder.
    Was he actively seizing?
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  36. #36
    Dr. Ruse Ruseberg Tarrant's Avatar
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    Not for the first two years. Finally yeah he was found on the floor of his office, but as I said he had the time loss and other stuff for a long time before it finally progressed to that.

    He's on a medication now for it that keeps it totally under control but unfortantly it lead to his medical discharge as he wasn't allowed to serve with it, meds or no. He was a lifer. (was discharged when he was 34)

    We learned a lot about seizures, there wouldbe times where he would just zone out and then look at the clock and it would be 25 minutes later. People would see him and just think he was reading his computer or whatever as he was giving no outward signs of anything but come to find out, he was having some weird type of seizure.
    Last edited by Tarrant; 06-18-2013 at 11:24 PM.

  37. #37
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Tarrant View Post
    Not for the first two years. Finally yeah he was found on the floor of his office, but as I said he had the time loss and other stuff for a long time before it finally progressed to that.

    He's on a medication now for it that keeps it totally under control but unfortantly it lead to his medical discharge as he wasn't allowed to serve with it, meds or no. He was a lifer. (was discharged when he was 34)

    We learned a lot about seizures, there wouldbe times where he would just zone out and then look at the clock and it would be 25 minutes later. People would see him and just think he was reading his computer or whatever as he was giving no outward signs of anything but come to find out, he was having some weird type of seizure.
    Hrmm will look into that also.

    So I guess my list is as following:

    - Sleep Lab
    - Infectious Disease
    - Seizures
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  38. #38
    Dr. Ruse Ruseberg Tarrant's Avatar
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    I would also check to make sure it's not Boneitis.

    Hope it's nothing too serious man and best of luck to you with it.
    Last edited by Tarrant; 06-18-2013 at 11:30 PM.

  39. #39
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Tarrant View Post
    I would also check to make sure it's not Boneitis.

    Hope it's nothing to serious man and best of luck to you with it.
    It might be SandyVagina-itis
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  40. #40
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    I really hope you don't have it, and I know you said you had an MRI, but a lot of your symptoms match MS even though that was already suggested by Kirun. In about 10% of cases, especially in younger people, the scar tissue indicating MS is not visible/very hard to detect on an MRI. The speech problem, numbness, headaches, light sensitivity, fatigue, and twitching are classic early MS. If you can't figure it out with the other things suggested, you could ask for a spinal tap. Yeah they're no joke but they can find stuff in there that could indicate autoimmune or any other oddness.

    Some other things you may want to get checked: Testosterone/thyroid levels if they weren't covered in the lab. It's not likely, but you could have concurrent issues like low T (which can cause fatigue, joint pain, and some mental confusion if the drop in T is relatively sudden) + something else.

    Best of luck.

  41. #41
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Weaponsfree View Post
    I really hope you don't have it, and I know you said you had an MRI, but a lot of your symptoms match MS even though that was already suggested by Kirun. In about 10% of cases, especially in younger people, the scar tissue indicating MS is not visible/very hard to detect on an MRI. The speech problem, numbness, headaches, light sensitivity, fatigue, and twitching are classic early MS. If you can't figure it out with the other things suggested, you could ask for a spinal tap. Yeah they're no joke but they can find stuff in there that could indicate autoimmune or any other oddness.

    Some other things you may want to get checked: Testosterone/thyroid levels if they weren't covered in the lab. It's not likely, but you could have concurrent issues like low T (which can cause fatigue, joint pain, and some mental confusion if the drop in T is relatively sudden) + something else.

    Best of luck.
    Thanks, yeah getting a spinal tap will be hard but I think I might pursue it. The major issue is that I am an American in Germany. Finding someone to explain things to is difficult. My GP and her practice is Americans. They have a few specialists here and there that they work with that speak enough English like the rheumatologist I saw that was an hour and a half drive away. The rest of the things they can sometimes refer to the US military hospital but not everything. That is the neurologist that was yawning through my explanation and scoffed at my labs. My wife has done three champagne taps on newborns but I doubt I could get her to tap me

    I will look into testosterone and thyroid after I have done the other things.
    oderint dum metuant

  42. #42
    Registered User Kedwyn's Avatar
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    Quote Originally Posted by suineg View Post
    So I tell my GP based on the CRP and BKS I would like to see infectious disease? Should we do bloodwork over again before making that call?

    That bloodwork was from January.
    Get it retested if the numbers are still elevated you need to get seen quickly. Get to an infectious disease specialist asap.

    PM me the new results if you want her to look at them again. I don't check this forum all that often.

  43. #43
    McStinkles Binkles's Avatar
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    Just to be a dick while I'm mildly intoxicated: https://en.wikipedia.org/wiki/Somatization_disorder

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    Former Zombie suineg's Avatar
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    Quote Originally Posted by Binkles View Post
    Just to be a dick while I'm mildly intoxicated: https://en.wikipedia.org/wiki/Somatization_disorder
    No sexual problems though
    oderint dum metuant

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    Putting in my bet: http://my.clevelandclinic.org/orthop...-syndrome.aspx

    Secondary question, what meds including over the counter stuff are you currently taking?

    Was your IgM levels elevated for the Lyme disease pathogen? Any weight loss?
    Last edited by Ishad; 06-19-2013 at 03:03 AM.
    Current PAD monsters: monster box
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    All your bloodwork is normal. You even did the full ENA panel and all was negative except ANA which is nonspecific and positive in 5% of normal people. A CRP of 3 is elevated but again no one would blink an eye at a level of 3. For any kind of chronic infections/inflammatory disorder you'd expect much bigger values.
    My differential includes, from most likely to least likely:

    -age-related fatigue --> lose weight, excercise more, eat healthier, sleep more regularly, deal with it



    -maybe concurrent testosterone deficiency
    -maybe house mold
    -lyme unlikely

    Rare causes of chronic fatigue syndrome are mold and lyme disease but it looks like you've very unlikely given low CRP.

  47. #47
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Ishad View Post
    Putting in my bet: http://my.clevelandclinic.org/orthop...-syndrome.aspx

    Secondary question, what meds including over the counter stuff are you currently taking?

    Was your IgM levels elevated for the Lyme disease pathogen? Any weight loss?
    I was taking absolutely nothing of any sort when all that blood was taken. Since then I have been taking Iron, B12, and some cholesterol stuff I don't remember that is all over the counter stuff. Occasionally I take an Excedrin Migraine.

    IgM-Ab was 18.7 and normal is 18. All the other variants were negative, there is a list of 15 different variants they tested for. This is why the rheumatologist initially was interested in it and then eventually threw it out. Weight gain but nothing crazy. That can be explained by 13 years in the Marines and then not having to exercise every day to keep up.
    oderint dum metuant

  48. #48
    Former Zombie suineg's Avatar
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    Quote Originally Posted by niss View Post
    -age-related fatigue --> lose weight, excercise more, eat healthier, sleep more regularly, deal with it
    This is what I am hoping. If I wasn't experiencing what I feel is severe mental degradation I probably wouldn't bat my eye at any of the physical "symptoms".
    oderint dum metuant

  49. #49
    Registered User Agenor's Avatar
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    Can't speak to the other symptoms Suineg, but I have/had the dry eye thing. Came out of no where, but wow I use to joke around with people who had it.... That shit can be brutal. Been using this stuff http://www.amazon.com/gp/product/B00...?ie=UTF8&psc=1 and knock on wood i've not had an episode of dry eye since. Been using it about 3 weeks. Some say it can take up to 6 weeks to kick in though. good luck.

  50. #50
    0011101000101001 Silence's Avatar
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    Quote Originally Posted by suineg View Post
    Ok I have some medical problems. I know we have some big brains here and maybe some people that are also doctors or scientists or whatever. I have done a lot of labwork and stuff but I don't think I am communicating with these German doctors very well about what is going wrong so I bring it to you guys. Maybe one of you have similar problems and your labs look the same so I added scans of my labwork.

    Symptoms:

    - Stuttering randomly, this one is odd because I will know what word I want to say, I can't say the word but if I choose a synonym in my head I can work it out. I also can say it over and over in my head sometimes and eventually will get it out but it's awkward.
    - Memory loss like big time. I don't remember what I ate for meals last week. I don't remember half of the people I meet. All kinds of issues here.
    - I am starting to have trouble using homonyms and screwing up a lot of my typing. Some of you might have noticed it here on the forums but probably not. I lose track of my thoughts a lot of the time during a post or typing an email or something else. It's super annoying.
    - Joint pain, arthritis pretty much.
    - Extremity numbness at times and twitching.
    - Extreme headaches.
    - Fatigue all the time. I could sleep for the rest of my life and probably still be tired.
    - Light sensitivity.
    - Dry eyes.
    - Rash under my eyes that comes and go and nothing clears it up.


    My general practicioner is American and she feels there is some kind of issue. We were looking at MS and Lupus but just can't back it up I don't think. Right now I am trying to just wait it out until some bigger symptoms show up but I am getting extremely frustrated.

    I have an MRI that had nothing show up out of place. I don't have the pictures from that with me but I doubt anyone would want to see my brain anyways.

    The lab work that was an issue was the ANA was positive and high. I also have markers for Lyme disease but not the rash and it isn't high enough for the amount of time that I have had symptoms.

    Does anyone have any thoughts? Know some specialist in their family they could refer me to that I could email labs to?
    My cousin's husband had really similar symptoms as you have. He hit 47 and had all sorts of unpleasant health issues. He went around the country for two solid years before one single person figured out his issues...now, he looks lots younger and is as hale as a 30-year old....in every single way.

    The doc that fixed him is now a close friend of the family, and she's awesome at figuring out what is wrong with someone.

    She fixed me, and that's was a tall fucking order.

    Hope you get it sorted out, because being really sick sucks, especially so if you have a wife and kids.

  51. #51
    FABULOUS Kuriin's Avatar
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    Since you've been going to a rheumatologist, I'm assuming you've done a rheumatoid factor test already.

  52. #52
    Registered User joeboo's Avatar
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    Quote Originally Posted by Silence View Post
    My cousin's husband had really similar symptoms as you have. He hit 47 and had all sorts of unpleasant health issues. He went around the country for two solid years before one single person figured out his issues...now, he looks lots younger and is as hale as a 30-year old....in every single way.

    The doc that fixed him is now a close friend of the family, and she's awesome at figuring out what is wrong with someone.

    She fixed me, and that's was a tall fucking order.

    Hope you get it sorted out, because being really sick sucks, especially so if you have a wife and kids.
    So...what was it?

  53. #53
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Kuriin View Post
    Since you've been going to a rheumatologist, I'm assuming you've done a rheumatoid factor test already.
    I am guessing so. Do you see it on that list? Is there a specific test I look for? I have some other lab work that mainly overlapped the rest. The first pic with the 1:800 ANA is the one from the rheumatologist.
    oderint dum metuant

  54. #54
    Iannis didn't do anything ZyyzYzzy's Avatar
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    Showed a MD in our ID department, and he said see a infectious disease specialist, but his reasoning was do it to slowly rule most things out, as nothing was elevated enough to really suggest an ID.

  55. #55
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    Ever have a concussion? Some of the symptoms are like a TBI. Might be that + something else, allergy etc.

  56. #56
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    It could have to do with time travel if you've been doing a lot of that?

  57. #57
    Treats objects like women Famm's Avatar
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    Quote Originally Posted by Jasker View Post
    It could have to do with time travel if you've been doing a lot of that?
    Do you not read many of his posts? He's straight from the 1950's!!!

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    Have you tried drinking any Cinnamilk? Iti'll fix whatever ails ya

  59. #59
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Jilariz View Post
    Ever have a concussion? Some of the symptoms are like a TBI. Might be that + something else, allergy etc.
    No allergies, they tried that.

    No concussion (I remember) and the neurologist wanted it to be a TBI so bad. It's like he is getting more money per TBI he diagnoses or something.
    oderint dum metuant

  60. #60
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Famm View Post
    Do you not read many of his posts? He's straight from the 1950's!!!
    Nyuk nyuk nyuk welcome to the Grown Up forums. Keep your BS out of here k thx.
    oderint dum metuant

  61. #61
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    I asked the beta WatsonMD IBM Medical Doctor about your condition and it came back with something rather surprising but obvious.


  62. #62
    McStinkles Binkles's Avatar
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    Quote Originally Posted by suineg View Post
    No concussion (I remember) and the neurologist wanted it to be a TBI so bad. It's like he is getting more money per TBI he diagnoses or something.
    Does that mean the next step is neuropsychological testing?

  63. #63

  64. #64
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Binkles View Post
    Does that mean the next step is neuropsychological testing?
    I have never had a period of unconsciousness so we ruled out TBI.

    Next steps are:

    1.) Dermatologist
    2.) Sleep Study
    3.) Infectious Disease
    4.) Testorone Test
    5.) Nerve conduction? test in my arms
    6.) Possible Spinal Tap

    I have dry eyes and skin problems around the eyes but a lot of saliva. We thought of that though. I did recently try some Visine and I have used it before but this time it set my eyes on fire like I had poured rubbing alcohol in them. I haven't tried that again. That was two days ago. I am going on vacation for two weeks and will be picking up the fight after that with all the tests listed above.

    If those tests don't reveal anything I quit. If that is the case either I am being a hypochondriac or there is nothing evident yet and I have to bide my time. I only worry because I feel my mind is going and going fast. I don't want to be on my motorcycle or behind the wheel of a car or working on high voltage at work and things just stop working at their full capacity and I make the wrong choice. Right now I triple check all my physical work. I have to read posts here and emails a couple times and still get things messed up. So annoying to reread your post twice and get confused by what you just wrote....
    oderint dum metuant

  65. #65
    Registered User sl4ck3r's Avatar
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    If you have any additional blood drawn just request to have your testosterone levels checked in the lab while they're at it. Had mine done with my routine checkup. Fast and easy to get over with.

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    Im curious suineg as you stated you were a Marine for 13 years as was I. Were you by chance stationed at Camp Lejeune and if so during what years? Reason I ask is there is an ongoing lawsuit due to extreme contamination of drinking water on the Base since the 1940's People are being diagnosed with all sorts of rare diseases.

  67. #67
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Legaeveth View Post
    Im curious suineg as you stated you were a Marine for 13 years as was I. Were you by chance stationed at Camp Lejeune and if so during what years? Reason I ask is there is an ongoing lawsuit due to extreme contamination of drinking water on the Base since the 1940's People are being diagnosed with all sorts of rare diseases.
    Yeah not Lejeune for more than a month, Pendleton might have something like that come up soon they have had issues with water quite a bit.
    oderint dum metuant

  68. #68
    Registered User Springbok's Avatar
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    Like someone else said, I'd make getting a Testosterone test a priority. Its a simple blood test, and you'll get results within the week. Had similar symptoms last year, had a testosterone test and it turns out it was extraordinarily low for someone my age (266). Not sure how/why it got so low - think I was working out too much, but with therapy is risen back to normal levels and I feel a trillion times better. You'll be lucky/grateful if that is all it is. Feeling unwell blows.

  69. #69
    Registered User Xarpolis's Avatar
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    I know that others have mentioned it, but a lot of your symptoms are very familiar in an MS kind of way. When it comes to joint pain, does it change on a near daily basis? Like your left wrist one day, your knee the next. Both thumbs, then your ankle?

    Also, the numbness. Could you elaborate on that a bit? Is it sectional, or your entire body?

  70. #70
    Registered User supertouch's Avatar
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    OP, this is going to sound like a weird question but do you floss regularly? the bacteria in your mouth can cause a slew of neurological and cardiovascular issues.

  71. #71
    Registered Dragonlord Deathwing's Avatar
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    Gargling some peroxide would fix that.

  72. #72
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Xarpolis View Post
    I know that others have mentioned it, but a lot of your symptoms are very familiar in an MS kind of way. When it comes to joint pain, does it change on a near daily basis? Like your left wrist one day, your knee the next. Both thumbs, then your ankle?

    Also, the numbness. Could you elaborate on that a bit? Is it sectional, or your entire body?
    It wanders a bit, yes. My GP and I were woried about MS but I guess if I am getting symptoms like that then I should most likely have lesions on my MRI which I did not. Sectional would be a good way to describe it. It's not tingling it's like I will for a couple seconds not know where my leg or arm is. I mean I know it's their but it feels heavy, dead, and useless.
    oderint dum metuant

  73. #73
    Former Zombie suineg's Avatar
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    Quote Originally Posted by supertouch View Post
    OP, this is going to sound like a weird question but do you floss regularly? the bacteria in your mouth can cause a slew of neurological and cardiovascular issues.
    I do not floss enough. I brush and mouthwash. I am trying to get better about it. I have decent sized gaps in between my teeth though that my dentists always compliment me on my flossing because not much stays in there with just the brushing and mouthwash alone.
    oderint dum metuant

  74. #74
    The White Knight Izo's Avatar
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    Teeth...are...are you Gromit?
    Wallace-and-Gromit-star-i-007.jpg

    Something rings a bell with dry eyes / skin + lots of saliva + fatigued. Could be a autonomous anomaly, possibly sympathetic ganglion component not working / clamped, possibly gangl. cevicale superior or ganglion stellatum.
    Sensory deprivation from the arms points to plexus brachialis injury, possibly including parts of the above.

    Motorcycle accident recently?
    Plexus brachialis MRI?
    Spinal disc herniation?
    Tox screen?
    Are you applying eye drops of any kind?
    Are you smoking or using any nicotine products?
    Using any cholinergics like pilokapin or neostigmin?
    Has a physician tested autonomous nerve functions with eye drops?
    Have you had x-ray of thorax recently - is apex pulmones clear of tumors?
    How is your heart - BT? / HR? / ECG? - what about under load? (bike test f.inst.) - syncope?
    You said you ruled out diabetes - what were the numbers in mmol? fasting? load test?

    http://www.hopkinsmedicine.org/neuro...njury_bpi.html

  75. #75
    Registered User Xarpolis's Avatar
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    I read this (VERY LONG) article and found it fascinating. It actually relates to a lot more than "just" MS. Pretty much any disease out there. It might have some relevance to whatever you're going through.

    Spoiler: 
    Can Anti-HIV Drugs Stop MS?

    I imagine the above headline might have furrowed a few eyebrows and crinkled some foreheads when first viewed by readers. HIV (the virus that causes AIDS) has nothing to do with MS, does it? Has Marc finally lost his last marble? Don’t MS patients have enough to worry about without having to contemplate AIDS?

    Yes, MS patients certainly do have enough to worry about, and no, the virus that causes AIDS has nothing to do with multiple sclerosis. HIV, though, is a retrovirus, and, strange as it might sound, there is increasing evidence that ancient retroviruses that have become incorporated into the human genome through millions of years of evolution may play a key role in the MS disease process. This might seem like something out of a science fiction novel, but this discovery of prehistoric viral material in human DNA has the potential to completely change the way we understand and treat MS and other diseases (including cancer), and could potentially lead to – dare I say it – a cure.

    There are currently two clinical trials underway attempting to shut down these ancient retroviruses in MS patients, and one of them uses a currently available anti-HIV drug. More on these trials a bit later, but first a little background, starting with a quick overview of virology. I know the mere prospect of “a quick overview of virology” is apt to make eyes glaze over throughout the Internet, but please bear with me, I’ll try to keep it as painless as possible.

    We’re all familiar with viruses, the little buggers that cause influenza, the common cold, and a many other diseases. Of course, bacteria also cause diseases, but viruses and bacteria, though both infectious agents, are very different beasties. Bacteria are living organisms, and when someone suffers a bacterial infection they can usually be treated with antibiotics, drugs which kill the guilty bacteria and thereby cure the patient. Antibiotics have no effect on viruses, though, because viruses aren’t alive, and therefore can’t be killed. Viruses are kind of like the zombies of the pathogen world, undead infectious agents that exist only to infect living things. The fact that viruses are “undead” is what makes viral diseases so hard to treat, and why we still don’t have a cure for the common cold.

    Unlike living bacteria, which can reproduce all on their own, undead viruses replicate by hijacking their victims’ cells and then using the resources within those cells to reproduce themselves. Most viruses kill the cells they invade by replicating to the point where the infected cells burst, releasing the reproduced viruses and thus spreading viral infection throughout the body. Another type of virus, though, called a retrovirus, actually inserts itself into the host cell’s DNA, and in effect become part of the organism they have infected, commandeering the host’s genetic material and cellular mechanisms to replicate themselves without destroying the cells they have invaded. This makes retroviral diseases (such as AIDS) extremely hard to treat, and coming up with ways to neutralize retroviruses has presented medical science with one of its most daunting challenges.

    Now, here comes the really strange part. When the Human Genome Project completed the incredibly complex task of mapping all of the genes contained in human DNA, it was discovered that 8% of our genetic material is comprised of the remnants of ancient retroviruses, many of which inserted themselves into our genetic material tens of millions of years ago during the evolutionary process, before humans were even human. These retroviruses were at one time in the distant past infectious, but have long since been rendered dormant, and it was initially thought that they were nothing more than “junk DNA”, left over genetic material that plays no role whatsoever in the development or functioning of a human being. These ancient retroviruses that are now part of the human genome were named Human Endogenous Retroviruses, or HERVs. They are a part of all of us, genetic remnants of our evolutionary history.

    Recent research into HERVs has provided tantalizing clues that rather than always remaining dormant, in certain circumstances these ancient viruses can be activated and may play a key role in many diseases, including multiple sclerosis, many autoimmune diseases, some cancers, and even schizophrenia. The mechanism by which HERVs are activated are not fully understood, but the prevailing thought is that the presence of other viruses and environmental agents, such as Epstein-Barr virus, the human herpesviruses, and other environmental triggers, or a combination of these elements, may “wake” these bits of ancient viruses that are part of our DNA. Once activated, this ancient retroviral DNA can cause our own cells to secrete proteins and antigens that may identify the host cell as a hostile invader, or otherwise initiate critical disease processes

    Within the last five years or so, it’s been established that virtually every MS patient is infected with Epstein-Barr virus, which is best known for causing mononucleosis/glandular fever. I know, many of you are saying, “but I never had mononucleosis or glandular fever, so I don’t have EBV!” The fact is that in the majority of cases infection with Epstein-Barr virus does not result in Mono, but rather can present as a bad cold or flu, or can even be completely asymptomatic. Over 90% of the general population is infected with EBV, but, remarkably, it appears that 100% of MS patients carry the bug. MS researchers have long puzzled over the role EBV might play in the MS disease process, since EBV infection alone certainly can’t be the sole cause of MS, otherwise far more people would have multiple sclerosis. The link between EBV and HERVs could finally clear up this mystery, for if a long-term EBV infection can turn on ancient retroviruses embedded in the DNA of genetically susceptible people, the connection between EBV and MS might finally be understood.

    Though the connection between HERVs and MS has yet to be proven, more and more evidence appears to be pointing in that direction, and the hypothesis does pull together some of the “wildcard” factors that have confounded MS researchers for decades. Among these factors are indicators that there is an infectious component to MS, such as the existence of “MS clusters”, geographic locations where MS appears to run rampant among the local population, and migratory studies which show that migration from areas of high MS to areas of low MS before the age of 15 decreases the risk of getting multiple sclerosis, with the reverse being true as well. Through the years many possible infectious candidates have been proposed, to no avail, but if the HERVs theory is correct, it’s a combination of infectious agents, including some hiding in a patient’s own DNA, that may be responsible.

    Both EBV (which is itself a human herpesvirus) and retroviruses have proven to be extremely difficult to eradicate, as can be illustrated by the fight against HIV. HIV is a retrovirus, and although medical science has made great strides in developing drugs that keep HIV infection under control (deaths from AIDS have plummeted in the last decade), there is still no way to completely eradicate the virus from the body of an infected person. One anti-HIV drug, Raltegravir (brand name Isentress) has proven to be quite effective in combating HIV, though, and also shows promise as an anti-EBV weapon.

    A clinical trial now underway at Queen Mary University in London, England, called be INSPIRE trial, is attempting to use Raltegravir to treat MS patients. Researchers hope that the drug will deactivate any activated retroviral material in the DNA of MS patients, while perhaps also combating EBV, and thus stop multiple sclerosis in its tracks. Another group of researchers in Switzerland are trying to accomplish the same outcome using an experimental drug that targets a protein on a specific HERV that is thought to be directly connected with MS, which has been dubbed the Multiple Sclerosis Associated Retrovirus, or MSRV. This is a small, 10 person Phase 2 trial whose primary goal is to establish the safety of the experimental drug being tested. Results from the INSPIRE trial, which is just getting underway, are not expected until August, 2014, and the results from the Swiss trial are expected in July of this year.

    It’s impossible to overstate the potential that this research has to completely reshape the multiple sclerosis landscape, with vast implications impacting the quest to wipe out many other horrendous diseases as well. If indeed prehistoric viruses embedded within our own DNA are at work driving the MS disease process, shutting down these viruses could amount to a cure. Yes, a cure for multiple sclerosis! Though it may be hard to believe, there is precious little work being done elsewhere to uncover the roots of MS, as so much research time and money is devoted towards finding newer and more effective (and more profitable) ways to suppress the aberrant immune response that is seen in the disease, a response that is in fact a symptom of some as yet unknown underlying cause. All of the current crop of MS drugs, and the vast majority of those in the experimental pipeline, either modulate or suppress the immune system, a mechanism of action which can sometimes dramatically improve the quality of life of RRMS patients, but will never do anything to cure multiple sclerosis. The research going on in London and Switzerland at last holds out hope for a cure, and represent a radical rethinking of the cause of many of the diseases that plague mankind.

    My intuition and instincts tell me that these research scientists are onto something, and it’s something potentially huge. It’s long been known that genetics play a role in MS, and it has also long been suspected that infectious agents are at work. The idea that Human Endogenous Retroviruses, bits of viruses that are in a very real way a part of us, encoded into our DNA, could play a key role in the MS disease process ties together both of these observations, as well as several others. The evidence to support this idea is mounting, and to me this hypothesis feels right in a way that no other MS related theory I’ve come across has before. Of course, you can (and probably should) take my “gut feelings” with a grain of salt, but I find myself brimming with enthusiasm that the science of treating MS is finally moving in the right direction. Of course, as I’ve often cautioned before, it’s vital not to let hope eclipse reason, and this research might well lead to nothing. But, somehow, I just don’t think that it will…

    Here’s a terrific video presentation by one of the lead researchers involved in the INSPIRE trial, which does a great job of explaining the research and the ideas behind it in a very accessible, easy to understand manner. I urge all readers to watch this video, as the information it contains has tremendous potential…


  76. #76
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    Quote Originally Posted by Springbok View Post
    Like someone else said, I'd make getting a Testosterone test a priority. Its a simple blood test, and you'll get results within the week. Had similar symptoms last year, had a testosterone test and it turns out it was extraordinarily low for someone my age (266). Not sure how/why it got so low - think I was working out too much, but with therapy is risen back to normal levels and I feel a trillion times better. You'll be lucky/grateful if that is all it is. Feeling unwell blows.
    What type of therapy are you on? I am in a similar situation and have read of a few different types of treatments people have for low testosterone. Was curious the type and frequency you are undergoing.

  77. #77
    Registered User Springbok's Avatar
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    Quote Originally Posted by Apex View Post
    What type of therapy are you on? I am in a similar situation and have read of a few different types of treatments people have for low testosterone. Was curious the type and frequency you are undergoing.
    I was getting basic testosterone injections twice a week (at the doctors office) until the levels returned to normal. Wasn't terribly painful and seemed effective. No coincidence that while on the therapy, my workouts were twice as effective. You will also have to go through some post-cycle therapy to keep estrogen levels down (no bitch tits!). Its worth pursuing, as I feel a ton better. Good luck.

  78. #78
    Garlic Provider Dyvim's Avatar
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    Quote Originally Posted by suineg View Post
    I have a third set of labwork I didn't scan and post that overlaps most of the tests but they added the Lyme that tested high and B12 which was good. We went ahead and did some B12 supplements to see if that would give me some energy but it didn't. That battery of labs also eliminated Celiac's.

    The Borrelia Burgdorferi IgG-Ab was double what it should be but Lyme was just not what they thought was possible. No rash and some other things he explained at the time, it just didn't fit.

    This is important, after consulting my mom who did this lab tests for a living, we did tele diagnose you with the following:

    a) Gout; do dieting and the joint pain may eventually go away, also your bloodtest suggest your a animalfat loving mofo, better go vegetarian for a while.

    b) Borreliosis; no idea why the rheumoatologist ruled that out, get a second opinion on it, if double checked and ruled out again its,prolly:

    c) EBV (Ebbstein-Barr-Virus) check on that one as well, easy to eversee, hard to diagnosis.

  79. #79
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    lol I love the internet

  80. #80
    Registered User khalid's Avatar
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    So my mom got diagnosed with congenital heart failure last week. Went to visit her today and was very disappointed to find out that due to my stepfathers urgings, she is essentially refusing to take any medication that she was prescribed. But no worries because my stepfather bought her a professional biomat to help ease her pain and swelling.

    Hell, it only cost them $1650, its way better than those expensive medicines! Listen to this pseudoscience bullshit from their site...
    The core of the Richway BioMat technology is a combination of far infrared rays, negative ion effects and the conductive properties of amethyst channels.
    I argued with them for about 30 minutes, my mom just started getting totally stressed and upset, so I just left. I just don't know what to do, uggh.

  81. #81
    Registered User Baek's Avatar
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    Suineg:

    I believe you have an imbalanced gut flora, namely the overgrowth of Candida albicans. http://www.drellenkahn.com/uploads/C...s_Syndrome.pdf

    easy way to check? eat about 3 cloves of garlic and tell me what happens. Garlic is a powerful antifungal and will kill a lot of the candida, they will then release their toxins and make you feel like shit (headaches, lethargy, fatigue, gas, alternating constipation/D).

    Garlic won't cure it but scrips might, and lifestyle eating habit changes. This is usually caused by prolonged antibiotic use in otherwise healthy people.

  82. #82
    McStinkles Binkles's Avatar
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    The symptom list associated with that disorder is highly amusing.

    -Are you human?
    -Are you alive?
    -Do you breath: air?

    You might have Chronic Candidiasis Syndrome.
    Last edited by Binkles; 07-19-2013 at 01:02 AM.

  83. #83
    Former Zombie suineg's Avatar
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    So nothing resolved here but some odd things have happened.

    I had some lower left gut pain not quite at the level of my appendix pain before it was removed. I had ignored the appenix pain multiple times and it was quite dangerous on the last time. This time I took it more seriously. They thought it was a bladder infection and made me piss. They then heard that I shit blood on a regular basis and decided colonoscopy was a good idea so they scheduled one. The doctor did a quick ultrasound to check and make sure everything was in the right place before he shoved the camera up my ass.

    He found a few tumors in my spleen. They did a CT scan and found some swollen lymph nodes as well. The colonoscopy was clean. The endoscopy showed a very small amount of h. pylori in my gut so I did antibiotics for that.

    I am waiting to hear back from urology/oncology on the military base instead of the German doctors who aren't understanding me and are hard to understand and want to cut me open ASAP.

    We of course aren't sure it's malignant until we yank something out. I am good with it all. Known about it for a month now so have just been a little distracted because of it but "thumbs high".
    oderint dum metuant

  84. #84
    Delicious Noodles Noodleface's Avatar
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    Good luck dude
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  85. #85
    Registered User Frenzied Wombat's Avatar
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    Quote Originally Posted by Springbok View Post
    Like someone else said, I'd make getting a Testosterone test a priority. Its a simple blood test, and you'll get results within the week. Had similar symptoms last year, had a testosterone test and it turns out it was extraordinarily low for someone my age (266). Not sure how/why it got so low - think I was working out too much, but with therapy is risen back to normal levels and I feel a trillion times better. You'll be lucky/grateful if that is all it is. Feeling unwell blows.
    I'm in the same boat. Was always tired, slept like shit, apathetic about everything, and had zero sex drive. Seriously you could put a supermodel in front of me that was DTF and all I'd be thinking about was whether she gave a good back scratch. Went to see a Urologist and my testosterone was 312 (I'm 40 years old). He said my options were to a) suffer or b) go on Androgel (for life) and be rendered infertile (possibly permanently). Not to mention you already see ambulance chaser commercials on TV asking you to call if you've had a heart attack due to testosterone therapy-- not exactly encouraging. I didn't feel like I had a choice, as my gf was at wit's end over the fact that I never want to screw, so I had him write me the prescription so I could try it out. Well, for the first month or so I felt like a million bucks. Tiredness went away within a few days, and within a week I had 18 year old wood and felt like a horny teen again. Within a few weeks I had so much energy I was actually looking forward to going to the gym for the first time in years.. About the only negative is that it turned me into some loud smart-ass 23 year old version of my current self. In any case, after a month or so the effect dwindled and despite still having decent energy, sex drive disappeared again. Decided to go see an endocrinologist instead, and he prescribed me Axiron, which hasn't proven any better than Androgel did at the one month point, however it did give me the worst case of back zits I've ever had since I was maybe 20 or so. Get my levels tested in a week and see him in two to discuss, but I'd really love to recapture the feeling of that first month.. Situation just sucks because I was hoping to have a kid one day, and from what I can tell that's not going to be a likely option if I continue down this path.

    Quote Originally Posted by Springbok View Post
    I was getting basic testosterone injections twice a week (at the doctors office) until the levels returned to normal. Wasn't terribly painful and seemed effective. No coincidence that while on the therapy, my workouts were twice as effective. You will also have to go through some post-cycle therapy to keep estrogen levels down (no bitch tits!). Its worth pursuing, as I feel a ton better. Good luck.
    You kind of imply here that you were on it, and once you got to the appropriate levels you stopped. I was under the impression that the treatment is for life, and that if you stop your levels will go back to what they were, or even lower. Is/was this not the case for you?
    Last edited by Frenzied Wombat; 04-29-2014 at 08:52 PM.

  86. #86
    Garlic Provider Dyvim's Avatar
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    To Frenzied:
    It really depends on what is causing your low testosterone levels.
    Rarely its just an imbalance caused by whatever life changing trauma. Most of the time its "male midlife crisis" syndrome and if treated early the testosterone gel therapy sometimes is enough to get your balls back on track and produce the normal testosterone rate once again. If not, its a life long therapy basically similar to the anti baby pills popping the girls do.
    Gel therapy recommends to get your t. levels checked on regular basis (think every 2-4 weeks with gel for the first 6 month) till you get enough data to basically make a chart.
    If the gel application isnt for you keep in mind theres also injections out there, 1 month or 3 month for life time therapy, they are also applied to dudes who arent producing any testosterone (eg. balls cut off) and are usually only recommend after kickstarting failed or will never happen, since a too high testosterone level can lead to serious sideeffects, your back zits you described could be one of them but more often balls shrinking to cherry seed size or going borderline rapist mad.
    Quote Originally Posted by tad10 View Post
    Nah. Khalid and Merkins are screwed and Araysar is getting a new Avatar. As I said, I learned my lesson from the Tuco bet. Don't bet unless you already know the outcome. ...

  87. #87
    Former Zombie suineg's Avatar
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    Lymphoma 100% confirmed, what strain they still don't know because it's not a common one, most likely B-cell they thinnk, going to move back to San Diego for treatment.
    oderint dum metuant

  88. #88
    Registered User Julian the Apostate's Avatar
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    Quote Originally Posted by suineg View Post
    Lymphoma 100% confirmed, what strain they still don't know because it's not a common one, most likely B-cell they thinnk, going to move back to San Diego for treatment.
    Shit man sorry to hear. How early on is it? Does it look like you'll need surgery and chemo or is it too early to tell?

  89. #89
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Julian the Apostate View Post
    Shit man sorry to hear. How early on is it? Does it look like you'll need surgery and chemo or is it too early to tell?
    Still unsure, they took about 15 tumors out which they used for pathology.

    I am in Germany and no way in hell am I going to do treatment here. When I get back to San Diego I will find an oncologist and start over with them.
    oderint dum metuant

  90. #90
    Registered Dragonlord Deathwing's Avatar
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    Just curious why you don't want to do treatment in Germany. Is it Germany itself, or that your extended family isn't there?

  91. #91
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Deathwing View Post
    Just curious why you don't want to do treatment in Germany. Is it Germany itself, or that your extended family isn't there?
    Main thing is job and insurance.

    Right now my job pays extra money for rent over here because I couldn't afford to live here if they didn't. I don't have enough sick leave for 6 or more months of chemo and can't afford to live here without that extra money which I won't get if I am not in a paid status.

    Insurance for me over here requires me to pay 100% of all costs up front, file a claim, they then reimburse what they feel like. It is never 100%. I can't afford to do chemo like that cash up front.

    Family is big also but those two previous things would bankrupt me instantly.
    oderint dum metuant

  92. #92
    Delicious Noodles Noodleface's Avatar
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    Sorry to hear dude.

    The plus side is there is a clearly documented way to pay for chemo if you watch a documentary I saw called Breaking Bad.

    On the serious hope it works out.
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  93. #93
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    Best of luck to you, suineg.

  94. #94
    Treats objects like women Famm's Avatar
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    How old are you?

  95. #95
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Famm View Post
    How old are you?
    33 was out of the blue, no symptoms.
    oderint dum metuant

  96. #96
    Registered User Frenzied Wombat's Avatar
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    Fuck that's nuts man, so sorry to hear. You're like the 3rd person I've heard of in the last few months that has gotten Lymphoma, all under the age of 45. Seriously Fuck Cancer. Since my mom died of it I've basically become a Cancer-Phobe and interpret every symptom as cancer. Have they staged your cancer yet?

    What's weird is that going back to your initial post, you list a lot of your symptoms going back years. Do they think you've had slowly progressing cancer all this time or were there new symptoms?

  97. #97
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    Fuck. Take care of yourself, you retard.

  98. #98
    Registered User Borzak's Avatar
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    Sorry man, hope it works out. I thought I had a bad year health wise.

  99. #99
    Former Zombie suineg's Avatar
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    Quote Originally Posted by Frenzied Wombat View Post
    Fuck that's nuts man, so sorry to hear. You're like the 3rd person I've heard of in the last few months that has gotten Lymphoma, all under the age of 45. Seriously Fuck Cancer. Since my mom died of it I've basically become a Cancer-Phobe and interpret every symptom as cancer. Have they staged your cancer yet?

    What's weird is that going back to your initial post, you list a lot of your symptoms going back years. Do they think you've had slowly progressing cancer all this time or were there new symptoms?
    Funny thing is all the 'symptoms' are just nothing at this point. They have nothing to do with the cancer and this was a freak accident that we found it.

    I was going in for a colonoscopy for the rectal bleeding. The doc said lets do an ultrasound to make sure all your parts are in the right areas and saw tumors in my spleen. Two CT scans later I had infected lymph nodes in my bladder, one a bit higher in my abdomen, and like 10-20 in my right armpit.

    They took out as much of the armpit ones as they could and biopsied them. Ten days later still no for sure answer on the classification. I see a hema oncologist on Thursday. He will stage it but since it's on both sides of the diaphragm for lymphoma that means stage 3 which isn't as scary as some of the other cancers. What we need to find out is how aggressive it is.
    oderint dum metuant

  100. #100
    Optimistic Pessimist Onoes's Avatar
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    Best of luck man, sorry to hear.

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